A cause of fibromyalgia

June 27, 2009

FIBROMYALGIA, HOW COME?

My fibromyalgia has returned with the vengeance that only those who have known this beast can appreciate. For about a year I had about forgotten that I had been under the control of this fiend for three decades; the Cymbalta was working like a charm, I assumed that there is a silver bullet, I had found it. I wrote several posts about how peace had finally come to my universe, I stopped writing because it was repetitive, there was nothing new to say.

Recently the nasty one has slunk out of the woods and sank his fangs into all the parts of my body; the wounds seemed slight, reaction to a new exercise program, a hamstring that I must have overstretched or somehow damaged. As the pain grew worse I checked with the people at the Chronic Pain Clinic who couldn’t think of anything different to do other than perhaps increasing the amount of Cymbalta. The pain led to fatigue that led to excessive worry about my recent heart situation; and so I began a series of tests which showed almost nothing except for apnea, which is now being managed pretty well thank you. The future was to either crawl into my hole and feel sorry for myself, a procedure that is not unfamiliar; or make a different noise about what is going on with this attack. Messages were sent to various people in white coats over at the Great Hospital by The Lake, allusions to the Baron Münchhausen were included, dramatic appeals to look at this differently than before were made.

There will be a gap here because testing, hearing results, passing to the next specialist, retelling the old story—that part doesn’t need repeating to those of you who have learned it well.

I finally braced my internist to examine what is going on right now with an eye to a million dollars worth of testing or to go home and live with it. Out of the conversation was his observation that there can be a cyclical nature to bouts of FM, had I noticed that, had anything big happened just about the time of this latest flare? There didn’t seem to be anything until I threw out my last comment about a family situation that had made the holidays the most painful of my life, but that it wasn’t a new situation and certainly had no physical aspect. When did the latest bout of FM begin? When did it become severe? The answer to both coincided with another family anniversary that also connected to the Christmas situation.

That was a day ago, in the time since I have been able to remember other instances and other flaring of the FM. The instances where I never had the courage to admit the pain caused by the rejection of almost everything I hold important, these things were too big to be expressed and just had to be endured, my cross to bear.

Needless to say I think we are on to something here, I can feel that release of tension and return of the easiness of understanding that comes at times like this. It certainly isn’t over yet but the beast has a vulnerable area and my knife is pushing deeply.

The internist suggested that on this blog I ask others if they had circumstances that might be coincidental, trauma of various kinds, patterns of recurrences such as anniversaries or reaction to events; any difficult situations that were too painful to express fully.

If you respond to this know that I don’t want to know personal details that might embarrass or identify you, you can send me private responses if you wish. I will merely pass the information along to the white coated guy who sparked this, to see if we can find some way to help others. If I have missed any comments about confidential matters or professional guides please let me know; I ain’t in the medical profession, I am not interested in passing along or even knowing your private events, just if you had them and could they have preceded a flaring of fibromyalgia?

7 Responses to “A cause of fibromyalgia”


  1. [...] Original post by Roger Johnson [...]

  2. pollyannapenguin Says:

    Hi – sorry you’re going through such a tough time, but glad to hear that you might be coming through it. I have just been recently diagnosed with FM, so this bit’s for the white coated guy:

    In my case it seems to be linked to my rheumatoid arthritis rather than an emotional issue … although you might argue that dealing with RA causes all sorts of emotional issues. However, RA also causes a chronic lack of sleep, and it seems that that MIGHT be an underlying cause of FM. Certainly when I sleep better for a few days in a row, I feel better and less achy. That all over ache feeling goes and I just have the RA pain left.

    Perhaps dealing with an unexpressed emotional issue also affects deep sleep – I’m sure it does for me.

    • Roger Johnson Says:

      Dear Anne:
      Thank you for your response which resembles my own in ways that I hadn’t mentioned;
      my FM began with recovery from painful orthopedic surgery about thirty years ago; other possible points have been a divorce, losing my job, trouble with my daughter. They are not all of the same nature but seem to have connections. One big factor is that I have just been diagnosed with severe sleep apnea two months ago, I never suspected anything like that until a sleep specialist took a look at things; the cpap machine has been wonderful and almost guarantees long, deep sleep every night. And as we all know a good night’s sleep is the best medicine for most anything.

      I will be reviewing the emotional trauma possibilities this week, to see what has been hiding and needs the cleansing of exposure to sunlight. From what I can see trauma can be either/or, the body reacts as it must to whatever is not resolved; my heart failure problems that started last fall didn’t cause emotional problems even though they rank pretty high on the physical side. This is an interesting hobby and I’ll try to keep updating as I discovery more.
      Roger

  3. pollyannapenguin Says:

    Hi Richard,

    According to this article
    http://www.medhelp.org/lib/fm-pt.htm “almost half of men with fibromyalgia and some women have obstructive sleep apnea”. Does anyone know what causes that? Maybe that’s the root of the FM and the emotional issues are the root of the apnea … or at least make it worse during periods of stress or something. I’m ‘winging it’ now – I can’t pretend to know what I’m talking about, having only been diagnosed with FM on Wednesday, but it’s all interesting stuff to think about!

    I’ll look forward to your updates on the blog!

  4. Frank Says:

    Roger,
    I hope by no you have been able to have just some kind relief. It is sad that you need to suffer so and that so many conditions are linked together.

    I haven’t been around much and have now just returned to write three posts. Haven’t even been on facebook, either. I have been in a real depressed turmoil, but as always being here writing seems to help me through the muddle.

    My best to you Roger,
    Frank

    • Roger Johnson Says:

      Hello again Frank:
      I am sorry to hear that you are in the vortex of depression, from my experience it is the worst disease in existence because it affects that part of us that underlies everything else.
      Frank, there is a way out of this seemingly never ending cycle, here is what I discovered after a lifetime of depression:
      First I made the decision that I wanted to feel better. I saw that there were a lot of people out there who just got along with their lives, and didn’t feel bad doing it, many people are happy.
      Second is that I did a search; mine was “who is the most effective person around in treating depression?; the important word was effective. I asked doctors in other fields, I went online with my question, I attended book signings and meetings–until a name and a method surfaced that struck me as being relevant to what I have. I followed the name and method and found peace for the first time in my life—without the reliance on medications.
      Recently I have been taking Cymbalta in order to manage the physical or genetic aspects, fibromyalgia and such, previously drugs were of temporary or no help, now the meds is part of my program.

      I can say honestly that I have not had a bout of depression that has lasted more than a day in about a decade. This may be the biggest news of my life.

      If I can be of help please let me know.

      Regards: Roger

  5. Elena Says:

    A cause of fibromyalgia: I just read this article, and I match it exactly with what is happening to me now. I went to the doctor and put me under the treatment of cymbalta. Little by litte I am starting to feel better, I just began my treatment.

Leave a Reply