Pain Management Clinic
April 22, 2008
Half an hour ago I received a call from the Chronic Pain Care Center , they just had a cancellation and would I like to come in tomorrow at 8 a. m.? My answer was an immediate yes, the two month wait to see them has now become little more than half a day.
They had sent me a series of questionnaires about my pain, my health, my attitude that I was going to answer in June; so I had to do them this afternoon. To question closely the specifics of pain is unsettling, like most people I had made a mental accommodation, a day to day way of handling this thing, my special way; now I have described it by questionnaires for medical and psychological doctors. All my previous accommodations are upset and would like to be back to their almost once comfortable positions.
This is my first professional visit to pain specialists; not only do I expect that they have all the possible modes of handling whatever it is that I have, there is the thought that if they don’t have an answer, the answer, then I am in trouble. I have been avoiding, denying that my pain may be impossible to relieve, the rheumatism or fibromyalgia pain; in the back of my mind there was the belief that there is a cure, but if I don’t search for it I can maintain that belief, that fiction. That notion is about to be tested.
Now that I have put the idea down here, that there is or is not an answer I can see that there will probably be a complex answer, things that will relieve the pain and things that will assist me living with whatever pain is left over. This is not an uncomfortable afternoon.
A series of questions has to do with my significant other , they are insistent that I list someone in my life to whom I turn, this isn’t an easy question. I saw in the paper that a recent survey found just over half of all women are single, from that I assume that a fair number live alone, are divorced. For every divorced woman there has to have been a divorced man: that means there are is a big bunch of divorced guys out here, and many of them are not living with someone else, many of us have parents who are dead, more than a few are alienated from their children, or never had any, perhaps don’t have a close friend, haven’t had a close friend since they growing up. I don’t think that I am alone in having trouble naming this significant other person. I mention only men because that is what I happen to be part of, if someone wrote that there are a large number of women who would have trouble with that question I wouldn’t be surprised.
About a decade ago I had to go to an Emergency Room at 3 a. m. I had thought that there is nothing lonelier than going to the E. R. alone at 3 in the morning. Even when I had a wife who didn’t like me she would have felt it her duty to go with me; I think that there are a number of situations where an unhappy spouse gives in to duty, I remember when I did it for her, she for me. Now I sit alone.
I volunteer to sit with people who are about to die, I have yet to have a situation where there is a spouse present; children often are in denial about the situation, are present physically but not fully. There can be nothing fucking lonelier than sitting someplace and waiting to die; yet it is a necessary, the necessary, act of our life. It can be described as the second most common act, the first being when we become alive. I sit with these people in order that their loneliness is lessened.
Several people have commented that I have been writing about weird stuff, that I have difficulty writing about everyday things. Yes, that’s the truth. Is there anything more everyday than the knowledge that I am alive but someday will not be? I guess that I am writing weird stuff, and so what?
It is a beautiful spring afternoon in Chicago, daffodils and tulips are spots of strong color after months of gray and brown smudges. Almost everyone I have talked with in the last few days has mentioned how much they are enjoying our spring; it doesn’t last for long, but that makes it even more precious.
That is all I have time for now, it is time to open a beer and cook some orange roughy fillets, fingerling potatoes, green pepper, broccoli, a fair amount of olive oil and garlic are about to be ingested by this occasionally weird guy; there may be a third beer tonight.
Watching the parade
February 23, 2008
I decided to write this short post because I have come to make doing this a good part of my day, a way of starting forward, the stretching exercises after a night’s sleep.
This has been a particularly hard week of winter, not that there has been heavy snow or very low temperatures, it is just that this hard season persists. This has been a week where I have been the subject of criticism, not more than I can handle, just hard criticism from many corners; it continued through to about midnight as I finished driving a limousine, full of one family, who seemed to question every turn that I was making, passed judgment on every turn that I had made, wondered if I knew where I was going, and in the end told me that the car was dirty on the inside. And do you know what? I did make a wrong turn, I made two of them in that five hours they were with me; and there was something spilled in an ice box, some juice that a child had dropped in there previously, that I wasn’t aware of. That was the end of that day, this is the sunny morning of this day.
There were others: landlord, potential girlfriend, and someone who had once been a friend; there was a lot of criticism of me this week.
I can’t say what today will be about, I know that right now there is bright, hazy sun, that there is a big wedding to be driven this afternoon, that the freeze will continue, other than that who can tell?
I don’t find it easy to separate the good that I might get from criticism, from the hard effect it has on my mood; the former is good, the latter not so good. It is what I can practice doing today, it is why I am writing this post, I want to put it out there that I have this problem to solve, that it is just a problem, is not anything to be kept secret, just something to work on like any other situation that I come across. Having written that I feel a bit easier about the situation, it’ll take more work, but I do see with more objectivity the difference between what was said, and the effect that I make of it.
When I am sitting with Bert, out at the home, he often becomes agitated: something he can’t remember, something he can’t do, the prospect of what is to come; at those times I suggest that we just sit and watch the parade go by: nurses, always busy and focused; aides doing the hundred, not always pleasant, tasks they do over and over again; patients, in wheel chairs, with their various disabilities, the ones who needs to be belted on to a gurney, but who are always included in any activity for as long as they can stand it. It is all a passing parade, some of it interesting, some of it humorous, some of it sad, some of it fucking pathetic—-it passes down that hallway, as we sit and watch; my old friend of four months, and I, sit and enjoy the view; we both know that sometimes we are part of the parade, and sometimes we are bystanders.
Bert can no longer drink liquids, every time he wants a drink of water it has to be prepared by adding a thickener to the liquid, something that keeps it from sliding down his throat and gagging him; that is the way that Bert drinks nowadays, perhaps that is the way I will drink someday; but not this day. The worst that I know is I will have, is my own remembering of the criticisms of this week, their residual pain; Bert has a more difficult day ahead of him.
What’s new
February 18, 2008
And yet I sit here with a fresh pot of coffee, I am putting down words, never a new word, never a new emotion, there hasn’t been a new story for thousands of years; and yet I sit here with a fresh pot of coffee and the need to write.
Leo Tolstoy never came up with anything that hadn’t been said previously; he wrote of family matters, love affairs, politics and war. And we love it that he did.
I am hung up on this idea of the new, a blind belief that newness is the same as life; but it isn’t, life is just life, it is being now, and making sure that there will be life after me.
The brown sparrows are at the feeder, they may be the same as were there yesterday, will be there again tomorrow, and the occasional cardinal. I don’t fill the feeder in hopes that an eagle or an ostrich will come to feed, I put seed there so that there will continue to be life outside my window.
I have written a few posts about how to cook, no detailed recipes, just how something is to be made into food the best way that I know. A good meal isn’t about new recipes, different ingredients, it is about enjoying what you are eating, what is in your mouth, the satisfaction of food well prepared, and food is the fuel for this body. Tomorrow we will all be hungry again, somebody will have to cook again. I might write a few more items all about how to make food again.
The sparrows eat, they warm themselves when there is a break in the clouds, they take advantage of eating a bit of snow for the water.
I ought to visit Bert in the home today, it has been over a week since I was there; it is not that I have signed a contract, am not receiving money, haven’t made a promise to his relatives, nor that he remembers me; visiting Bert is like putting out seed, cooking dinner, doing the laundry, taking a shower; none of it means anything in the long run, but it is necessary for today’s run.
My earlier mistake was to be buying into this notion that new is important, that there really might be something new, that the tiny novelties displayed for amusement are important; bullshit—there is being, and there is nothing, being is the important one.
That’s it for today, and tomorrow, just as it was yesterday.